It is apparent now to this 5000+ strong community of readers that I write about life problems, philosophy and PCOS, apart from some poetry and short fiction here and there. What truly humbles me is the good response I am getting on Facebook, Instagram and right here on my website. Many of you are suffering from PCOS, just like me and trust me life has never been harder. Getting into my medical history would be a tedious task but I want to tell you that it has been one tough journey.
I have done some pretty rad stuff while living with PCOS and I do not recommend that you follow everything I did. I am only sharing my experience here.
My first encounter with PCOS
So I heard about PCOS/PCOD when I was 19 and my doctor scared me like anything. She even went ahead to call me unfit for conception and openly declared that I will never be a mother. God damn her! I have never seen such a rude doctor in my life. I was devastated.
It has been a journey of self-doubt, dwindling self-confidence, totally unnecessary pills and hair growing at strange places
I was young and had no intention to get married or have babies but such remarks bother you like anything. I read tons of information about PCOS/PCOD on the internet and each article scared me a little more. Since then, it has been a journey of self-doubt, dwindling self-confidence, totally unnecessary pills and hair growing at strange places. My skin was darkening at different places, my hair was falling, my face had acne and my digestion was ruined. Yes, wrecked and ruined.
The pills and the ‘treatment’
Though there is are hundreds of thousands of websites providing information about PCOS and its effects, none of them actually do anything good for you. Trust me. I have been to every possible website on PCOS and my work (digital marketing, promotions and content) keeps me in the loop of websites and people who write about PCOS. None of them were good. Who would you depend on in the end? Your doctor. Your gynae.
My gynae (not the first one who declared me infertile, she deserves a special place in hell. Sorry, just being honest with my feelings about her. She was rude) asked me to start taking pills- many pills. One was Glycomet 500 mg once a day to begin with. By the end of 30 days, I was taking 500 mg of glycomet thrice a day. There was another medicine which was given to heart patients. Another one was given in combination with glycomet to diabetics. One was for thyroid which was lower than the dose I needed.
The star of the show was HRT.
The star of the show was HRT. I was being given birth control pills as my estrogen levels were screwed. My prolactin was way high- as high as a pregnant woman. My testosterone was high too (though it has been high forever. I had excess adrogens even when I was 9 years old, as tested by doctors). Then there was a pill for weight loss. Then one pill had to be used twice a week. Then there were multivitamins. Finally, there was a calcium supplement.
I was not losing weight (I gained 25 kgs within a few months of starting the treatment and was officially obese), my hormone levels were terrifying and hair loss had already turned me into a low self-confidence zombie.
What happened then?
I puked every time I was given a pill- especially glycomet. My body refused to take any of those pills. I was scared. I checked online an was terrified reading the side effects of the pills I was consuming. They could have caused troubled for my kidney, my heart, my liver and more. I was shocked. Why would my doctor do this to me.
I was shocked. Why would my doctor do this to me.
On researching a little more, I found that the doctor was simply prescribing a pill for every symptom I was experiencing. The doctor’s assistant had asked me all the symptoms I was experiencing before I met gynae. They were simply trying to manage my symptoms and doing nothing about the problem. One pill for each symptom. That is it.
It was devastating to say the least.
It was devastating to say the least. It was a hard decision to make and my mother was concerned about me being ‘childish’ about my treatment, but I refused to take another pill. I will not do it. I will not let a pill dictate my life. My digestion was screwed, my blood pressure was soaring high and I could not even climb one flight of stairs without panting like a marathon runner at the end of the day. It was terrible.
I don’t know if you should do it or not, but here is what I did. I removed all the pills from my medicine cupboard. Everything was gone except the thyroid pill- Thyroxine 25 mcg.
Within 2 months, most of the acne was gone. It was magic.
Within 2 months, most of the acne was gone. It was magic. Surprisingly, I felt a little more active than before. I always experienced a mind fog while I was on medication. It lessened. It wasn’t gone but the symptoms were less severe. My cycles were lengthening in the meanwhile. It was one reality that I had to live with. By the end of the third month, the withdrawal effects of HRT were in place. I had gained more weight, specially around the abdomen. My hair was still falling out like crazy but it subsided in the months to come.
Deep down, I was feeling much better after getting off medication but I was worried if my rad experiment would land me in big trouble.
So I went to a doctor- a sympathetic endocrinologist. He helped me with thyroid issues.
I will tell you more about this in the next post.